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News reports have revealed the tragic fate of siblings who have a brain disease which will stop them from ever sleeping again until they eventually die.

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Hayley Webb, 30, who is a news reporter and her brother, Lachlan, 28, from Queensland, Australia, suffer from Fatal Familial Insomnia, a harrowing condition which so far has no cure.

The Daily Mirror reports that the pair inherited an extremely rare, debilitating brain disease which affects one in 10 million people all over the world.

The disease which has already killed the pair's mother and grandmother, are wary as they do not know when it will strike.

Lachlan and Hayley Webb play

Lachlan and Hayley Webb

(misspetite)

 

The reports reveal that FFI causes irregular clumps of protein to damage nerve cells, causing holes in the part of the brain that regulates sleep.

Hayley says:

"It could happen tomorrow but until we're in that danger zone we probably have a good 10 years up our sleeve and I am praying that there is a cure between now and then.

"I don't want to sit here while the sands through the hour glass pass waiting for it to trigger and for me to cark it.

"I want information, I want answers and I want a bloody cure."

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Fortunately, Hayley and Lachlan are now part of a pioneering study at the University of California led by US couple, Eric Minikel and Sonia Vallabah, and are reportedly undergoing various tests to try and find a cure before the disease manifests itself.

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